Girl diagnosed with inoperable brain tumour after suffering migraines
Brain tumour: Cancer Research UK on 'different types' in 2017
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A “beautiful” seven-year-old girl was diagnosed with an inoperable brain tumour after complaining of double vision and migraines. Brave Jasmine Freeman has since undergone weeks of gruelling radiotherapy to slow the growth of the tumour. But her parents are desperately trying to organise other forms of treatment not offered by the NHS.
Her parents Anthony Freeman, 36 and Jakki Nguyen, 41, from Bracknell, said they “felt sick” and “wept desperate tears” after being told they had such limited time with Jasmine.
After three weeks of daily radiotherapy Jasmine finally “rang the bell” this week to celebrate the end of her latest round of treatment.
In a joint statement Anthony and Jakki said: “We are so proud of how far she’s come, but the fight isn’t over yet.
”We have to get her ready for possible trials next and pray in the meantime that radiation has worked and can slow the growth of the tumour enough for us to get her the treatment she deserves.”
Since receiving the heartbreaking news last month the family has crowdfunded more than £120,000 in a bid to have more time with their “beautiful girl”.
They are raising the money to pay for private care and enter Jasmine into clinical trials available abroad.
Anthony said: “The consultant stressed that children with this tumour don’t live past 12 to 18 months.
”We were told Jasmine would have six weeks of radiotherapy which would see her face pinned to a table with a mask, five times a week for six weeks, after which she will be made comfortable. Our world was turned upside down.
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“How can you not be able to cure this type of cancer?
“We’ve seen advances in treatment and cures for other diseases. How is it possible that there is nothing that can save our little girl?
“This is just the first hurdle of many to come. Now it’s time for us to focus on finding the best trial for Jasmine and to make sure we have more time with her.
“We are extremely thankful to have reached a phenomenal total on our fundraising page, the love and support from everyone has been so touching.
“Whilst there are no clinical trials or treatments in the UK for this kind of tumour at this time and the prognosis is extremely poor, there are a small number of clinical trials abroad.
“We are currently waiting six weeks from Jasmine’s last radiotherapy appointment and hope to start a trial after this time.”
Despite Jasmine’s diagnosis of midline glioma, she has remained a fighter.
Anthony added: “Jasmine knows she is poorly and has a lump in her head. She’s been an absolute warrior since her diagnosis.
“After her first radiotherapy session she wanted to record a video for her YouTube channel to explain it to others.
“She said: ‘It’s easier than you think, you just have to lay on the bed with a mask on, just like when you’re in a spa you have the green face mask and cucumbers over your eyes’.
“No-one should have to go through this, let alone a seven-year-old child.”
You can donate to Jasmine’s fundraiser here at gofundme.com/f/jasmine-the-warrior-princess.
Common symptoms of a brain tumour include:
- Seizures (fits)
- Persistently feeling sick (nausea), being sick (vomiting) and drowsiness
- Mental or behavioural changes, such as memory problems or changes in personality
- Progressive weakness or paralysis on one side of the body
- Vision or speech problems.
If you experience any of these symptoms, speak to your GP.
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